Click Tips: Epilepsy

In the "Click Tips" the editorial team of REHACARE.de presents commented links about the common chronic neurological disorder Epilepsy.

International Bureau for Epilepsy (IBE)
The IBE was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness. To improve international understanding of epilepsy, IBE publishes a quarterly magazine, the International Epilepsy News, which keeps readers informed on international developments.
- www.ibe-epilepsy.org

International League Against Epilepsy (ILAE)
The ILAE was founded in 1909 and is an organisation of more than 100 national chapters. The goals of the ILAE are to advance and disseminate knowledge about epilepsy, to promote research, education and training and to improve services and care for patients, especially by prevention, diagnosis and treatment.
- www.ilae-epilepsy.org

Global Campaign Against Epilepsy
The Global Campaign Against Epilepsy was launched in 1997 with the ambitious aim to bring together three global organisations – the International League Against Epilepsy, representing medical professionals; the International Bureau for Epilepsy, on behalf of people with epilepsy and their families, non-medical professionals and the general public; and the World Health Organization, leading international public health agency – in a joint partnership to address the hidden, neglected but global problems of people with epilepsy. This objective is reflected in the Campaign title and logo “Epilepsy: Out of the Shadows”.
- www.globalcampaignagainstepilepsy.org

American Epilepsy Society (AES)
The American Epilepsy Society is one of the oldest neurological professional organisations in the United States. The Society seeks to promote interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy. Membership consists of clinicians, scientists investigating basic and clinical aspects of epilepsy, and other professionals interested in seizure disorders. Members represent both pediatric and adult aspects of epilepsy.
- www.aesnet.org

Epilepsy Foundation of America
The Epilepsy Foundation of America is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organisation works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programmes conducted at the national level, epilepsy clients throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country.
- www.epilepsyfoundation.org

Epilepsy Ontario (EO)
Epilepsy Ontario is a registered charitable non-profit non-governmental health organisation dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders, by promoting information, awareness, support services, advocacy, education and research.
- www.epilepsyontario.org

Joint Epilepsy Council (JEC)
The Joint Epilepsy Council of the UK and Ireland (JEC) is an umbrella charity providing the representative voice working for the benefit of people affected by epilepsy. Its mission is to represent the united voice of epilepsy in the UK and Ireland and to present evidence based views on the need to for improved epilepsy services and influence decision makers in the health, social and education arenas.
- www.jointepilepsycouncil.org.uk

Epilepsy Society
The Epilepsy Society is the leading national epilepsy medical charity and provides up to date information on all aspects of living with epilepsy, from driving, employment and pregnancy to leisure, travel and medication. The information is intended to help those affected by epilepsy make informed choices and decisions. On the website readers can find an epilepsy helpline, online epilepsy forum, epilepsy campaigns and awareness raising, epilepsy information and e-newsletters.
- www.epilepsysociety.org.uk

Epilepsy Action
Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 600,000 people with epilepsy, as well as their friends, families, carers and health professionals. As well as campaigning to improve epilepsy services and raise awareness of the condition, Epilepsy Action offers assistance to people in a number of ways including a national network of branches, accredited volunteers, regular regional conferences and freephone and email helplines.
- www.epilepsy.org.uk

Epilepsy Bereaved (EB)
Founded in 1993, Epilepsy Bereaved is the leading voluntary organisation in the UK and internationally working to prevent unnecessary deaths from SUDEP (Sudden Unexpected Death in Epilepsy) and other epilepsy deaths. EB is the only charity dedicated to the support and enablement of those bereaved in this way.
- www.sudep.org

Young Epilepsy
Young Epilepsy campaigns for better health and education services, to raise awareness and increase understanding of epilepsy through information, support and training. Their health services provide diagnostic, assessment and rehabilitation services to children and young people in the UK and from other countries. These services along with their research programme aim to achieve valuable insights into childhood epilepsy.
- www.youngepilepsy.org.uk

Epilepsy Connections
Epilepsy Connections is a charity founded in April 2000 which provides information and support to people with epilepsy, their families, friends and those with whom they live and work.
- www.epilepsyconnections.org.uk

Epilepsy Australia
Epilepsy Australia is the national coalition of Australian Epilepsy Associations. It was formed in 2000 to work with and on behalf of member associations as a national secretariat. Epilepsy Australia is a not-for-profit organisation and a nationally registered charity and is committed to improving the quality of life for every Australian living with epilepsy. Actively delivering counseling, support and information to all who access their services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy.
- www.epilepsyaustralia.net

Epilepsy Care Group (Singapore) [ECG]
The Epilepsy Care Group (Singapore) is a non-profit, volunteer-based organisation that began in 1993 as an effort to address the needs of persons with epilepsy and their caregivers in Singapore. The ECG is a registered society under the Societies Act. The ECG is also recognised as a charity under the Charities Act by the Commissioner of Charities.
- http://epilepsycare.org

An interesting link is missing? The editorial team of REHACARE.de is happy about your suggestions, comments and hints. You can contact us at redaktion@rehacare.de.