JuSu Hubinger - That's how she rolls

JuSu Hubinger is a mother of two children. That she gave birth to them after the diagnosis Multiple Sclerosis is as natural to her as the fact that she is living a fulfilled family life with MS. Which funny situations everyday life in a group of four has to offer and to what extend MS has an influence on it, she tells us on REHACARE.com.


Photo: JuSu Hubinger; Copyright: JuSu Hubinger

JuSu Hubinger; © JuSu Hubinger

Name: JuSu Hubinger
Age: 36
City: near Frankfurt, Germany
Occupation: PR expert
Impairment: I have Multiple Sclerosis and "disturbances of sensitivity", this means a permanent tingling in the body, also heavy limbs. Because of this I have a degree of disability of 40 percent.
More about JuSu Hubinger (only in German) at: www.mamaschulze.de
When did you last laugh heartily and what about?

JuSu Hubinger: When my husband and I laughed about something our older daughter said. She said:
"Mum, do you know what one should not do?"
"What is it?"
"Peeing in the inhalator and than inhaling."

What have you always been wanting to do and why have you never done this so far?

JuSu Hubinger: Actually I have always been wanting to go travel from Moscow to Beijing with the Orient Express. But first I had no money for this, then there was the diagnosis MS and right after that the children. Maybe I will just make this trip later ...

Which person has influenced you most?

JuSu Hubinger: My husband. He is completely at rest in himself and also very positive by nature. I learn from him every day. Especially when it comes to coping with MS.

You have the chance to become the German Federal Commissioner for the Disabled. What would you do first?

JuSu Hubinger: Promoting inclusion in day care centers, kindergartens and schools. I think it is sad how many parents still have to organize and worry when they want to send their disabled children to a facility with "healthy" children.
Photo: JuSu Hubinger and the logo of her blog ; Copyright: JuSu Hubinger

Her shirt has the imprint "I have MS ... and nobody sees it...". On her blog "Mama Schulze" JuSu Hubinger makes MS and living with it - as a working mom of two kids - more visible; © JuSu Hubinger

Your life is made into a film: Who would represent you?

JuSu Hubinger: Hmmm, a good question. If it would really be only about my present life until the age of 36 - maby Nora Tschirner (German actress)?! I think she would have the necessary portion of humor to give my story the easiness it really has.

I would like to be ...

JuSu Hubinger: a four year old child for one day. Just playing the whole day, feeling protected and cared for and not knowing anything about diseases, war and all those crises of the world.

Which questions would you like answered the most?

JuSu Hubinger: How can Multiple Sclerosis be cured?

What I finally want to say...

JuSu Hubinger: Diseases and disabilities just belong to our lives. There is not just only sunshine. For this reason, we all should accept diseases and disabilities as an everyday occurrence and act like that.