The National Association of the Deaf (NAD) is the nation's premier civil rights organisation of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value.
The World Federation of the Deaf (WFD) is an international non-governmental organisation representing approximately 70 million Deaf people worldwide. Most important among WFD priorities are Deaf people in developing countries; the right to sign language; and equal opportunity in all spheres of life, including access to education and information.
The British Deaf Association is the largest Deaf-led organisation in the UK. They represent the British Sign Language community, which is united by shared experiences, history and, most importantly, by language. As a member-led organisation their work is focused on achieving equality for Deaf people through campaigning and community engagement. Working with local Deaf Communities is crucial to the success of BDA campaigns and creates opportunities for Deaf people to develop and engage with each other and the wider community.
Based in Brussels, Belgium it is a not-profit European non-Governmental organisation (ENGO) comprising National Associations of the Deaf (NADs). It is the only supranational organisation representig Deaf people at European level and is one of the few ENGOs representing associations in all 27 EU Member States, including Iceland, Norway and Switzerland. Aiming to establish and maintain EU level dialogue with the European Union institutions and officials in consultation and co-operation with its member NADs, it also has participatory status with the Council of Europe (CoE).
The Alzheimer's Association is the leading, global voluntary health organisation in Alzheimer's care and support, and the largest private, nonprofit funder of Alzheimer's research. It works on a global, national and local level to enhance care and support for all those affected by Alzheimer’s and related dementias.
The U.S. Congress created the Alzheimer's Disease Education and Referral (ADEAR) Center in 1990 to "compile, archive, and disseminate information concerning Alzheimer's disease" for health professionals, people with AD and their families, and the public. The ADEAR Center is a service of the National Institute on Aging (NIA), one of the Federal Government's National Institutes of Health and part of the U.S. Department of Health and Human Services. The NIA conducts and supports research about health issues for older people, and is the primary Federal agency for Alzheimer's disease research.
The web site reports on the latest scientific findings, from basic research to clinical trials; creates and maintains public databases of essential research data and reagents, and produces discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer's disease.
The Alzheimer Disease & Frontotemporal Dementia Mutation Database (AD&FTDMDB) aims at collecting all known mutations in the genes related to Alzheimer disease and frontotemporal dementias.
Alzheimer’s Disease International is an international federation of more than 75 Alzheimer associations. Representing people and nations on all continents, the organisation has become the Global Voice on Dementia. ADI works locally, by empowering national Alzheimer associations to promote and offer care and support for people with dementia and their carers, whilst working globally to focus attention on the epidemic and campaign for policy change from governments and the World Health Organisation.
The American Health Assistance Foundation seeks to eradicate age-related degenerative diseases by: advancing research seeking causes, prevention, treatment, and cures; promoting positive behaviors to combat these diseases; and facilitating the public's efforts to assist those who are affected. AHAF has been designated a nonprofit organisation.
The Society was founded in 1982 by a small group of people who were caring for a family member with Alzheimer's Disease or a related dementia. Today, it is a national voluntary organisation with an extensive national network of branches, regional offices and services that aims to provide people with all forms of dementia, their families and carers with the necessary support to maximise their quality of life.
The Scottish Dementia Clinical Research Network has been set up with the intention of spreading a culture of clinical research in dementia across Scotland and improving recruitment from both urban and rural areas.
The Spinal Injuries Association is the leading national charity for spinal cord injured people. SIAs aims are to offer support and assistance from the time of injury and for the rest of a paralysed person's life, to provide services to increase an individual's quality of life, support the families of newly injured people, to increase knowledge and awareness of the causes and consequences of spinal cord injury, to campaign for the best medical and social care for spinal cord injured people. Online there is a message board, a chat and the National Library on Spinal Cord Injury, a unique reference collection with online catalogue.
ASPIRE is a registered charity formed in 1983 for rehabilitation and reintegration, and works with people who are spinally injured to promote well-being and independence. Through its projects and programmes, Aspire offers practical support to the 40,000 people living with a spinal cord injury in the UK so that they can lead fulfilled and independent lives in their homes, with their families, in work places and in leisure time.
A national charity offering people paralysed through spinal cord injury the opportunity to take up challenging outdoor activities: which act as a catalyst in regaining confidence, independence and motivation. Back-Up is for everyone affected by spinal cord injury, regardless of age, level of injury, or background. Back-Up is there for family members, too. Their services include mentoring, wheelchair skills training and activity courses as well as support in getting back to work or school after an injury.
The European Spinal Cord Injury Federation has 25 members. All members of ESCIF are independent national organisations with their own statutes and whose main objective is to represent people with spinal cord injury in their country.
The British Association of Spinal Cord Injury Specialists is made up of senior doctors in Great Britain, Northern Ireland and Eire. They aim to improve the acute and long-term management of spinal cord injury and the training of doctors in the speciality. The following web site will give you the contact names of the leading consultants in each of the Spinal Injury Units in Britain and Ireland. BASCIS works to improve the quality of care for Spinal Cord Injury patients and the training of doctors in the speciality.
The International Spinal Cord Society is a membership organisation of over 1,000 clinicians and scientists from 87 countries. They regularly update their knowledge at the Annual Scientific Meeting held in a different country each year. They aim to promote the highest standard of care in the practice of spinal cord injury for men, women and children throughout the world and endeavour to foster education, research and clinical excellence. Spinal Cord, their official journal, is essential reading for those working full time in spinal cord injuries and those who have a special interest in basic science and any of the of the organs or systems affected by spinal cord injury.
MASCIP is a national forum to promote standards in clinical practice, foster research and encourage service development. Open to individuals with a professional interest and activity associated with SCI. The Association's prime objective is to provide a national professional forum to promote standards in clinical practice, foster research and encourage the development of health and social care services for people with spinal cord injuries. MASCIP exists to enable all professions and grades of staff associated with the care and welfare of people with Spinal Cord injuries, both within and outside of Spinal Cord Injury Centres, to articulate professional issues and concerns.
Spinal Cord Injuries Australia was formed as the Australian Quadriplegic Association in September 1967 to provide suitable accommodation for young people with severe spinal cord injuries. Their services have expanded as the need and opportunity arose. They now extend their services to all people with physical disabilities.
The American Academy of Neurology, established in 1948, is an international professional association of 24,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centred neurologic care. The AAN is strongly committed to its mission and focuses its efforts on ensuring the reality of the principles and standards set forth in the AAN mission statement.
Spinal Research is the UK’s leading charity funding medical research around the world to develop reliable treatments for paralysis caused by a broken back or neck. Spinal Research raises money to fund research into clinical treatments as well as vital basic science research.
INSPIRE is a UK national charity which was formed in 1985 by people who were themselves spinal cord injured and who wanted to raise funds for the then embryonic Medical Physics Department in Salisbury. In February 2000, INSPIRE became a member of the Association of Medical Research Charities (AMRC) and in May 2008 was awarded partnership status by the National Institute for Health Research by the Department of Health.
Spinal Injuries Scotland is the national voluntary organisation concerned with new and long-term spinal cord injured people, their relatives and friends, along with those involved in the management, care and rehabilitation of the injury. SIS provides immediate support through the office based Information Service and operate a self-referral information line. SIS also provides a legal and welfare rights advisory service.
It is the first Autism Radio Station in the United Kingdom, which will broadcast local, national, and worldwide. People with Autism face lots of social barriers, so by establishing the radio station is to bring down those social barriers and improve communication across the spectrum for those with Autism & Asperger syndrome.
It is the home of the Autism Awareness Puzzle Ribbon, one of the most recognisable cause-related symbols, and founded National Autism Awareness Month, which helps focus attention on autism in April of every year. The Autism Society’s 170 chapters nationwide are incubators for local programs such as Safe and Sound, camps, respite care, and social skills events.
This web site provides articles, educational resources, links to local, national and international support groups, sources of professional help, lists of camps and schools, conference information, recommended reading, and moderated support message boards. The web site resources are an addition to the annual conference, newsletter email and phone support provided by MAAP Services.
World Autism Awareness Day (April 2) shines a bright light on autism as a growing global health crisis. WAAD activities help to increase and develop world knowledge of the autism epidemic and impart information regarding the importance of early diagnosis and early intervention.
Irish Autism Action is an umbrella organisation with over 40 member groups and also individual members. In April 2009 it launched the National Autism Helpline which is operated by parents. It is Ireland’s first autism helpline which provides impartial and confidential information, advice and support for people with an autistic spectrum disorder, their families and professionals.
Autism Rights was established to research, lobby and campaign for the human rights of people with Autistic Spectrum Disorders (ASD) in Scotland, in particular to campaign for the provision of appropriate health treatment, education, social welfare and justice.
The society is the UK's leading charity for people affected by autism. It has 20,000 members, more than 100 branches, and provides information, advice and specialist services to 100,000 people living with autism every year.
Autism Anglia was formed following the merger of the Essex Autistic Society, Norfolk Autistic Society & NACHA (the Norfolk Autistic Community Housing Association) in 2008. It exists to 'promote the welfare, education and care' of children, young people and adults with autism and in so doing provide support and assistance to their families and carers.
Autism-Europe aisbl is an international association whose main objective is to advance the rights of persons with autism and their families and to help them improve their quality of life.
The IBE was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness. To improve international understanding of epilepsy, IBE publishes a quarterly magazine, the International Epilepsy News, which keeps readers informed on international developments.
The ILAE was founded in 1909 and is an organisation of more than 100 national chapters. The goals of the ILAE are to advance and disseminate knowledge about epilepsy, to promote research, education and training and to improve services and care for patients, especially by prevention, diagnosis and treatment.
The Global Campaign Against Epilepsy was launched in 1997 with the ambitious aim to bring together three global organisations – the International League Against Epilepsy, representing medical professionals; the International Bureau for Epilepsy, on behalf of people with epilepsy and their families, non-medical professionals and the general public; and the World Health Organization, leading international public health agency – in a joint partnership to address the hidden, neglected but global problems of people with epilepsy. This objective is reflected in the Campaign title and logo "Epilepsy: Out of the Shadows".
The American Epilepsy Society is one of the oldest neurological professional organisations in the United States. The Society seeks to promote interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy. Membership consists of clinicians, scientists investigating basic and clinical aspects of epilepsy, and other professionals interested in seizure disorders. Members represent both pediatric and adult aspects of epilepsy.
The Epilepsy Foundation of America is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organisation works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programmes conducted at the national level, epilepsy clients throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country.
Epilepsy Ontario is a registered charitable non-profit non-governmental health organisation dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders, by promoting information, awareness, support services, advocacy, education and research.
The Joint Epilepsy Council of the UK and Ireland (JEC) is an umbrella charity providing the representative voice working for the benefit of people affected by epilepsy. Its mission is to represent the united voice of epilepsy in the UK and Ireland and to present evidence based views on the need to for improved epilepsy services and influence decision makers in the health, social and education arenas.
The Epilepsy Society is the leading national epilepsy medical charity and provides up to date information on all aspects of living with epilepsy, from driving, employment and pregnancy to leisure, travel and medication. The information is intended to help those affected by epilepsy make informed choices and decisions. On the website readers can find an epilepsy helpline, online epilepsy forum, epilepsy campaigns and awareness raising, epilepsy information and e-newsletters.
Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 600,000 people with epilepsy, as well as their friends, families, carers and health professionals. As well as campaigning to improve epilepsy services and raise awareness of the condition, Epilepsy Action offers assistance to people in a number of ways including a national network of branches, accredited volunteers, regular regional conferences and freephone and email helplines.
Founded in 1993, Epilepsy Bereaved is the leading voluntary organisation in the UK and internationally working to prevent unnecessary deaths from SUDEP (Sudden Unexpected Death in Epilepsy) and other epilepsy deaths. EB is the only charity dedicated to the support and enablement of those bereaved in this way.
Young Epilepsy campaigns for better health and education services, to raise awareness and increase understanding of epilepsy through information, support and training. Their health services provide diagnostic, assessment and rehabilitation services to children and young people in the UK and from other countries. These services along with their research programme aim to achieve valuable insights into childhood epilepsy.
Epilepsy Connections is a charity founded in April 2000 which provides information and support to people with epilepsy, their families, friends and those with whom they live and work.
Epilepsy Australia is the national coalition of Australian Epilepsy Associations. It was formed in 2000 to work with and on behalf of member associations as a national secretariat. Epilepsy Australia is a not-for-profit organisation and a nationally registered charity and is committed to improving the quality of life for every Australian living with epilepsy. Actively delivering counseling, support and information to all who access their services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy.