Study: Many parents of children with disabilities don't make care plans

02/26/2018

Photo: Two sisters, one with the down syndrome; Copyright: panthermedia.net/DenysKuvaiev

In case of illness or death of the parents, "it affects everyone in the family when you don't have plans in place," said Burke. In these situations, another sibling usually steps in and takes care of his or her disabled sister/brother, which could be emotionally troubling for both of them.