For grandparents and their grandchildren new
communication doors were opened;
© University of Utah iSTAR team
For three years, University of Utah researchers have been deploying a computer-based design program called SketchUp in workshops to teach and develop life skills for youth on the autism spectrum.
In the latest analysis of experiences from the educational workshops, researchers have found that using the technology also helps open new communication doors with grandparents of the students. The shared positive experiences helped create a more supportive environment and, in turn, improve relationships throughout their social and familial networks.
"Including grandparents in the program is an important and innovative component of our research," says Scott Wright, member of the U's Gerontology Interdisciplinary Program and lead author on the paper. "And it just makes sense, given the critical support grandparents provide in families, particularly those that have children with disabilities including autism."
Autism, also referred to as autism spectrum disorder (ASD), is a neurological disorder commonly characterized by atypical social skills, decreased verbal and nonverbal communication and repetitive stereotyped behaviors. At the national level, one out of every 88 children is diagnosed with ASD, according to recent estimates from the Centers for Disease Control. The estimate for Utah is one in 47 children.
Grandparents are important in the social network of children on the spectrum, because they are often involved in the children's care as well as treatment decisions for the family. For example, a 2010 survey by the Interactive Autism Network found that about one-third of American grandparents were the first in the family to raise concerns about ASD in their grandchild; 71 percent played some role in the treatment decisions; and one in 10 live in the same household as their grandchild with ASD.
As previously reported, seven boys aged 8 to 17 years old diagnosed with autism participated in workshops designed around the 3D modeling program called SketchUp, as a part of the iSTAR5 project. The program was designed to facilitate students' spatial-design skills and social engagement. The iSTAR5 project is a different educational approach as it focuses on strengths and interests in youth on the spectrum rather than deficits or disability. Family members, including grandparents, were involved in the workshops by participating in family events and school presentations of the students' work.
To understand the experiences and perspectives of adults dealing with a diagnosis of autism in their family, two focus groups were conducted with grandparents of the enrolled students. The first was held after the workshop had ended and the second was conducted three months later. Six grandparents voluntarily participated. Grandparents' initial concerns about kids spending too much time playing computer games had abated by the second focus group.
Discussions revealed that by observing and participating in the technology workshops, the grandparents came to recognize the value of computer skills as a way for their grandchild to build on his strengths, which also opened more possibilities for the child's future.
Researchers also learned that the grandparents found in the technology an interest that their grandkids could share with them – even though the adults did not uniformly share the kids' enthusiasm for using computers.
REHACARE.de; Source: University of Utah