What makes a day a good day to you?
Tahina Andale: A good day is always a good pain day. A day when brainfog and fatigue don't keep me from doing the things I want to do. If there is still enough energy for a walk with my partner and time with friends (e.g. pen and paper games), then it is not only a good day, but a very good one.
Which auxiliary means or daily living aids are indispensable for you?
Tahina Andale: A walking aid is indispensable for me. I have various canes and two wheeled walkers – so I am prepared for most situations. A tray to carry things like books, teacup, etc. on the walker. Large pillbox to keep me going all week. Handle reinforcements to open bottles. A special brush so I can brush my hair on my own. Sunglasses and umbrella to be protected from sunlight. A shower seat is also essential. Just like my smartphone. It reminds me to take my medication and important appointments (doctor, physiotherapy, lymphatic drainage, etc).
What would you like to see from society and your fellow people in dealing with people with disabilities?
Tahina Andale: To recognize that disability can affect us all at any time, and therefore, realize that efforts to promote inclusion and reduce barriers affect us all.
Which assistive device would urgently need to be invented and/or improved?
Tahina Andale: Book holders. I have already tried a few, but so far there was none that would have been permanently practical.