The pictorial comparison that the meteorologist Edward N. Lorenz used for his research, which later became known as the butterfly effect, inspired Eva Vos for her book title. You can find out why she sees herself as a butterfly tamer in her literary work. Why the author has never left Europe before or what kind of question she would like to be answered, she tells us at REHACARE.com.
Name: Eva Vos Age: 43 City: Munich, Germany Occupation:Author, blogger, mother and housewife Impairment: I got diagnosed with Multiple Sclerosis in 2004. Restricted mobility after a heavy MS episode and dependent on walking aids since then.
Eva Vos: I like humor, for example the way Heinz Erhardt loved to joke. I like to write poems myself and every now and then a cheeky saying comes over my lips. I'm laughing at myself, too. I may be the only one who laughs. But that doesn't matter, because humor is always a great thing.
What have you always been wanting to do and why have you never done this so far?
Eva Vos: Travelling the world, yes, I wouldn't dare. I have not yet come beyond Europe. I have respect for long flights and being abroad. I don't know why and I hope that one day I will be able to transform this fear into courage and the joy of discovery. There's so much to experience.
Which person has influenced you most? And why?
Eva Vos: I would say my father. When I was a child, I wanted to be like him. Then again, I did not want to be. But I always wanted to make him proud. Did I succeed? Today it is my husband and my children.
You have the chance to become the Commissioner for the Disabled in your country. What would you do first?
Eva Vos: Much has already been done for disabled people, and we must acknowledge that. But it may still be a little bit more.
I used to go to comprehensive school. It was equipped with an elevator and ramps and so on, so it was accessible. A girl who sat in a wheelchair was in my class as well. She was one like everyone else and, of course, she was one of us. Apart from the fact that we learned to deal naturally with people with disabilities, it was quite normal for her to be there.
Moreover, "Accessibility in schools" would not only be beneficial for pupils. Because if I want to go to my children's school for the Parents' Talk Day, I have to climb many steps.
But it is not only in schools that there are insurmountable barriers for people with physical disabilities. This must change. That is why I call for accessible and integrative schools: Does a staircase makes sense or can't you also go up a ramp?
Eva Vos does not want to be subdued by MS. She describes her life as a tightrope walk. But the author wants to learn to fly. In her blog she keeps you updated about her progress.
What is especially near and dear to you?
Eva Vos: I am particularly concerned about encouraging people to think. With my book "The butterfly tamer, multiple sclerosis - how the beat of a butterfly's wings changed my life", I have already tried this. There's more between heaven and orthodox medicine. We may dare to contradict, to think independently and to listen to our inner healer. When a doctor claims that a disease is incurable, it refers to his methods. He cannot cure the disease with his means. But who knows, maybe others can do it in a different way? We always have a choice. What we want to believe in is entirely our own decision.
I would like to be ...
Eva Vos: ... braver, more self-confident and succesfull.
Which question would you like to get answered?
Eva Vos: Why am I here? What is my destiny? What should I cook today?
What else I wanted to say about me...
Eva Vos: Thank you! Thank you for my wonderful and patient family. They are supporting me and understanding me, mostly more than I do myself. And thank you for this questionnaire. It is a beautiful way to report about people dealing with severe challenges. Thank you for giving me the opportunity.