Better care and networking: how networks fight for people with rare diseases


Photo: A group of people with red balloons at an event for Rare Disease Day in Berlin; Copyright: ACHSE e.V.

In 2020 Rare Disease Day falls on a special day: 29 February. Since 2008, the aim has been to set an example on Rare Disease Day – on the streets, at events or in social networks.

Photo: Dr. Miriam Schlangen; Copyright: NAMSE

Dr. Miriam Schlangen, Head of the NAMSE office

Photo: Anne Hofmann; Copyright: private

Read also in our Topic of the Month: