What makes a day a good day to you?
Bastian K.: A good day for me starts refreshed, healthy and with time for myself. Afterwards, it is productive, but stress-free and relaxed. Filled with interesting contacts and experiences. There is also time to study and spend with friends or family. At the end of the day, I'm a little bit better and further along than yesterday's me. Oh, and of course, if the day is warm and sunny, that's a big plus. Because I am an absolute summer person.
Which auxiliary means or daily living aids are indispensable for you?
Bastian K.: In fact, my feeding tube [PEG, editor's note]. Without all my other aids, such as the wheelchair, the nursing bed or the patient lift, life would of course be much more complicated and tedious. But I could somehow compensate for all that with a little brainpower and commitment. Without my feeding tube, however, I would die sooner rather than later.
What would you like to see from society and your fellow people in dealing with people with disabilities?
Bastian K.: More openness and encounters at eye level. In the meantime, I live in an environment where I feel that this is the case. However, whenever I leave my own "bubble", I notice how far behind society (in Germany) often still is.
Which assistive device would urgently need to be invented and/or improved?
Bastian K.: I think there are already a lot of very great tools. Often without us knowing it. That's why we have to get an overview from time to time, for example at REHACARE, of the useful little helpers that are now on the market and from which we can benefit in our individual situation.
What I am convinced of, on the other hand, is that we urgently need to improve accessibility in our society, in our everyday lives. It can't be that in 2022, in one of the richest countries in the world, people in wheelchairs won't be able to travel independently by train, or that every outing with friends first requires extensive research to find out whether the intended location is accessible at all and whether it is possible to use the toilet there, for example.