What has been your biggest challenge so far that you have mastered – and what has helped you?
Julia Wagner: My biggest challenge so far has been accepting my MS unconditionally. Because I used to be very perfectionistic, I felt like I was no longer "right" and no longer functioning the way I wanted. I felt abandoned by my body. When I found out this summer that I had to take stronger medication resulting to my desire to have children being pushed back by at least three years, I became even more aware of how much the disease was affecting my life. This allowed me to learn to let go even more, to accept that I cannot control my illness and my life in general and thus to enjoy my life to the fullest. During this phase, spending time with myself to process, journaling, coaching and of course my partner as well as family and friendshelped me the most. I am very grateful to have such wonderful people who are always there for me and support me in my life.
What can the assistive technology industry learn from the Corona pandemic to make life easier and/or better for people with disabilities in the future?
Julia Wagner: During the Corona pandemic, maintaining social contacts was made even more difficult for people with disabilities. Exchanging with others, especially about topics that have nothing to do with the disease, is indispensable. I would find a platform that is accessible to everyone – regardless of disability or limitation – enormously important. In this way, new relationships with people can develop that motivate and give hope not to give up.
If nothing would be impossible: Who would you like to meet one day and why?
Julia Wagner: In my opinion, less bureaucracy and more goodwill would make the lives of many people with disabilities easier. And here too, I think that increased psychological support/mental support would be of inestimable value in helping people cope better with their new situation and the uncertainties it brings.
What was your best REHACARE experience?
Julia Wagner: I haven't been there yet.
What else I wanted to say ...
Julia Wagner: I wish everyone who is reading these lines a lot of strength and confidence.I wish everyone who is reading these lines a lot of strength and confidence.