People with rare diseases have to deal with many limitations and burdens. In ACHSE, they support each other. The network bundles resources and know-how and makes the "rare" heard.
VKM - German Self-Help Association for People of Small Stature..... "Look me in the eyes little one" .....this famous phrase by Humphrey Bogard, we know from the movie Casablanca. It is
We are an association of patients, relatives, non-affected persons and physicians who work together to improve the living situation of patients and their families. Numbers founded in 2006 by the
TOGETHER WE ARE STRONG Around 50,000 to 60,000 people in Germany suffer from the consequences of poliomyelitis (polio), an insidious disease that has been considered overcome in this country since
The association The Bundesverband Selbsthilfe Körperbehinderter e.V. (BSK) is an association of people with physical disabilities. It is based in Krautheim, was founded in 1955 by Eduard Knoll and is
The Cochlea Implantat Verband NRW e.V. is one of the regional associations of the Deutsche Cochlea Implantat Gesellschaft e.V. The members of the CIV NRW are cochlear implant and hearing aid users,
CRPS Netzwerk gemeinsam stark e.V. Welcome to the new information portal for the rare disease CRPS - Complex Regional Pain Syndrome. The CRPS Network Together Strong. unites CRPS self-help groups
The German Alzheimer Society is a self-help organization which, as an umbrella organization of more than 130 member societies nationwide, is committed to a better life with dementia. We support and
The Deutsche Dystonie Gesellschaft e.V. (DDG) was founded in 1993 as a self-help organization. It is recognized as a non-profit association, as its activities are not aimed at economic profit. Anyone
With around 10,000 members, the DGM is the largest and oldest self-help organization for people with neuromuscular diseases in Germany. Advancing research activities and supporting those affected and
Our mission Affected person competence, personal initiative and personal responsibility Far-reaching decisions are often made for the lives of disabled people without their being heard or involved.
Our most important tasks and goals include education and public relations work to raise awareness of this rare, neurological disease, myasthenia gravis, and to enable faster diagnosis by physicians
We are affected by the rare diseases GBS, CIDP or their variants. Our experiences make us experts in our own field. Each of us has found his or her own individual way of dealing with the disease. We
Arthrogryposis multiplex congenita, or AMC for short, is a congenital form of joint stiffness in which several joints are usually affected. It is a specific form of physical disability. AMC cannot be